I'm Feeling Better...Mom Can Tell

My new habit of grabbing the hair on both sides of my head.

My mom is trying to break this habit. She doesn't want me pulling my hair out.

I was really thinking hard about grinning.

Relaxing on my side.

I weighed in at 18 pounds 7.2 ounces. So, I haven't lost any weight!

Alayna is doing great today. They have turned her cannula down to 1.5 L of oxygen which is significantly less than when this journey began. Her stats look great and she keeps trying to knock the cannula out of her nose. As you can see from the pictures, she's picked up a new habit. When she gets tired she puts her hands up by her head and grabs the hair on each side of her head. I'm trying to put a blanket between her hands and head to prevent her from pulling her hair out. It seems like it's another comfort technique for her. Alexis had a hair twisting habit around age 1-2 years old and it was torture trying to break it. I would prefer not to go down that path again. Alayna is getting back to her old self because her legs are starting to slam the bed when she is trying to fall asleep.

The nurse weighed her last night and she is about 18 1/2 pounds. She is still pretty small compared to what her brothers and sister were at this age. They were about her size at 8 months old and Alayna will be 10 months in 2 days. She is gaining, but not very fast. It is known that weight gain tapers off a bit for any child as they get older, but especially seen in 1p36 kids. So, we'll continue to monitor her. I can't wait to feed her a bottle again. She hasn't had a bottle since Friday, November 16th. That's 11 days ago. I can't imagine not having food in my mouth for 11 days, can you?

I'm still waiting for the pulmonary doctors to make rounds. But I'll remind you that she is off the antibiotic now (7 days), she has no IV, she has no NP tube, and she is only taking in 1.5 L of oxygen. Things are definitely improving. And I'm still not convinced that the seizures weren't related to the virus. My gut says that they were brought on by that. She hasn't had any since that first incident. I'm anticipating the ride home already. I can't wait to be able to call Dana and tell him to come and get us!