Sunday, June 21, 2009

Updates about "Miss Alayna"

I needed at least 6 arms during Alayna's first hair cut!

Holding the toy, the pacifier, the cape, her....aaaahhhh!

All I could do was smile and laugh! Alayna didn't want her hair cut. She wanted a nap!

More fussing.....

Wild thing!

Such a sweetie.

Stander time which seems to be really helping her bear weight!

Douglas and Alayna getting ready to head to the ball park!

"Mom, is that a ceiling fan?"

All smiles, but not directly at the camera.
She still doesn't make eye to eye contact all of the time and it's difficult to get her to look at the camera.
Alayna, hands out of your mouth please!
Now she looks and it's kind of blurry! Oh well!


Iowa City Visits

Cardiology

It was our goal to get all of Alayna's documentation from Peoria transferred back here to Iowa City Hospital. Cardiology is one of the last areas we needed to do this in. So, we headed to Iowa City a few weeks ago to check in with Dr. Reinking. We didn't expect any problems with Alayna's heart, but some of the other 1p36 kids do have heart issues to deal with and we feel it is best to be proactive. Alayna did have both a VSD and ASD at birth, but both healed and she was released from her previous cardiologist at about 2 months of age.
In Iowa City, Alayna had a chest x-ray, EKG, and a echo cardiogram performed all in a matter of two hours. She was really good during the first two things, but was really tired by the time the cardiogram was supposed to be done. All I can say is thank God for patient doctors and musical toys! The x-ray and EKG looked good, but when the doctor listened to Alayna he thought he heard a slight murmur. To be sure what he was dealing with he ordered the cardiogram. He got a good look at her heart and everything was just fine. We don't have to return to cardiology for 5 years! Yippee! However, if her pediatrician would have a concern or we notice her tiring out more than normal or sweating profusely, then we'll want to go back sooner. But I hope we don't have to. This was a great way to start off the day at Iowa City!

Genetics

This is the very last piece of the puzzle that needed to be transferred from Peoria as well. Our new Pediatric Genetic doctor is Dr. Sheffield. He took pictures of her hands, feet, and face and was very pleasant to talk with. He is definitely familiar with 1p36, but like he said we will probably teach him more than he can offer us. And like I've always said, the parents are the experts in this case. 1p36 is such a newly diagnosed and researched syndrome and there is still lots to be discovered. The plan is to check in with them every year or two.

1st Hair Cut

Alayna got her first hair cut at Kountry Kutters. Pam was so patient and I am so grateful. Alayna was tired of course by the time we got in the chair and it was all I could do to hold on to her, the pacifier, and a toy. She kept wiggling out from my arms. But we got the job done and now her lovely curls comb out much easier than before. Having all of that hair is beautiful, but such a job to keep untangled and nice looking.

Visit from a Virus

Alayna's youngest brother, Douglas, caught a virus right when school was ending. He had absolutely no symptoms other than running a temperature for 6 days! I took him to the doctor two times because I wasn't convinced that it was viral, but it was. Then Alayna must have caught the same bug. She ran a fever for 3 days and was as cranky as ever. Her appetite wasn't as good as it usually was, but she had no other symptoms at all. I always worry a bit more with her than the other kids because I'm afraid her issues will escalate into something else. So, I took her to the doctor as well. They poked her finger and the blood test also showed she was fighting off a virus. I shared this information with a few of my other friends and some of their children have recently gone through the same thing. Be on the watch for the this weird virus!

Therapy

Alayna's eating is continually improving. In the last few days she has eaten almost a full Eggo waffle and a huge bowl of macaroni and cheese! She really is getting the hang of chewing and when I tell her to "chew it" she gives me a big smile and thinks it is funny. Today at PT, her therapist was impressed at how well she would stand freely with her AFO's on. She needs some support still, but for her to keep herself upright is a huge accomplishment. We will continue to work on this and especially help her keep her knees from bending.

Summer Fun

We are enjoying the summer break and spending time with each other at home. Alayna has been a true joy these past few weeks (minus the time she had the virus) and I like the fact that she is easier to entertain and play with. She also continues to love to be cuddled and hugged and I enjoy that too!

Thursday, May 28, 2009

Summer is Almost Here!

My brother, Douglas, loves me! And look at the dirt on his pants...ugh!
Stander time!
Look at that gorgeous curly hair! I love it, but it is so tough to manage right now. Alayna still wears a pony tail nearly every day. Tangles and more tangles.

Our pretty little princess wearing her Lexi's old teletubbies p.j.'s. Yes, I kept tons of stuff and it is wonderful.
Love the smiles!



Summer is almost here and we are counting the number of school days left! We are all very ready for a break from the alarm clocks and the normal routine. Alayna continues to grow and make advancements. And even though they may be small strides, they are huge to us.

This girl can eat!

First of all, boy can Alayna eat! She has made huge progress in this area and I'm thrilled. Here is a sample daily menu for Alayna: breakfast - entire bowl of oatmeal and a yogurt with milk or juice, lunch - vegetable, pudding and maybe 1/2 banana with milk or juice, snack - yogurt with graham crackers and finally dinner - vegetable, fruit parfait cup, 1/2 banana and milk or juice. Alayna's variety of what she eats is still pretty limited, but I was so excited to learn that she will finally take a bite out of a banana and chew it. It doesn't pop right back out anymore! She is doing a good job trying to maneuver it around with her tongue and keep it in her mouth. Last weekend she took a few bites of a grilled cheese and again I was so excited that I had to text Dana to tell him. Since she has been eating more she has decreased her intake on liquids and isn't as fond of her milk as she used to be. She'd rather have a bite of something! Her mouth is usually always open like a little bird waiting for her food. Alayna also enjoys eating banana-nut cheerios for breakfast. However, we have to put them in a baggie and crush them with a rolling pin. She can't eat them quite yet whole without gagging. We also use graham crackers a lot and smash them too. We add them to yogurt and baby food (fruits) to help thicken them and give them a different taste. She loves it!

Neurology Update

Dana took Alayna to Iowa City last week for a neurology check up. She hasn't had an seizures for quite a long time that we've witnessed anyway. The doctor said everything looked good and she recommended Alayna keep the same dosage of 45 mg of phenobarbital per day. We go back in 6-9 months. So, no news is good news!

Sitting and Standing

Alayna continues to stand in her stander each day for 30 minutes at a time. I admit that sometimes it is difficult during the work week and she misses her "standing" sessions once in a while. There is only so much time in a given evening and with 3 other very active, busy children our schedules are crazy. Alayna's sitting is getting so much better! She can initiate sitting straight up by herself and give those postural muscles a workout. She is also recognizing when she is falling backwards because she will laugh or smile and her expression says "oh, yeah I forgot to put my hand down." But she is definitely doing much better balancing on her own and playing with a few toys for longer periods of time. We are getting there!

Sleep and Teeth

Alayna went through another bad spell of sleeping awhile back. It was a bit rough right after spring break, but since then it has been pretty good. However, just in the past few days she has been waking up around 3-4 am crying. Poor thing. I do think it is her teeth again. The doctor told me they are like wisdom teeth and come up and then go back down. I put orajel on her gums last night, but the thing is you have to be quick and completely awake and on cue to do this. And at 3:30 am I was not! You see, she got me last night and bit my finger and when she clamps down she doesn't let go. Remember, she has no clue she is biting anyone. It's just an instinct to clamp down. And so, it turned into a waiting game of when is Alayna going to give me my finger back? Oh, I thought I was going to wake the entire house. It hurt and it still does today! Once I gave her some motrin and layed down with her on Alexis's bed, she relaxed and stopped crying. Thankfully we were only up an hour and both back in our beds by 4:30 am. Tonight she gets the motrin BEFORE bed!

Thursday, May 7, 2009

The Untold Story

Alayna in the stroller at the ball diamond. She still does pretty well sitting in this particular stroller. I am glad we have the new Kid Kart, but my fear is taking it someplace and her not napping in it as well as she does this. She likes to wiggle around and sometimes turn to her side. I just don't see that possible for the Kid Kart. It's pretty restrictive.
Alayna sitting in her new wheels! I am still trying to get used to it before I get brave enough to take it out and about. I forget how to make things collapse.

It is very supportive for her back and nearly every other place on her little body. It straps around her waist and over her chest. It has feet restraints to give her extra support too. The seat can be removed and turned around to face the "pusher." It can also be removed and put on a spare set of wheels that we can use for indoor purposes. That's nice because we know the big wheels are bound to get dirty outside.

I'm really glad it has a tray that we can slide on if we want to. It's all about entertainment when we go places and hopefully this will help. It will also be good for when she goes to school.

Alayna standing in her stander again! I must say that having all of this equipment is great, but very overwhelming both emotionally for Dana and I and physically.

Playing patty-cake with Grandma Diana and loving every minute of the attention. Sometimes keeping Alayna happy is a huge challenge and it sucks every ounce of energy out of you.

Alayna sitting in the bumbo at the ball diamond. We have tons of games this summer, so she better get used to going!
She is a bit squinty because of the sun, but not terrible. I remember when the sun would make her sneeze and trigger her gag reflex and she'd throw up. Thank God those days are over. I do have wrap around sun glasses, but my guess is she won't keep them on anyway. I'll give them a try though.

The Kid Kart is Here!

We are very excited to say that the Kid Kart is finally here. It's probably going to be Alayna's way of mobility for awhile until that special time when she will someday take steps and walk. Even though we carry her most places still, it is nice to have. It sits high up and can be pulled up to a table when a stroller can't do that. It is very supportive and is therapy in itself. Thank you again to everyone who donated to her fundraiser. We used those funds to help pay for this. We really appreciate it.

The Untold Story

I feel compelled again to type another heart to heart for all of the blog readers. I'm going to call it the untold story. It's those happenings or feelings that we parents of special needs children deal with on a daily basis. It's those things that unless you have a special needs child you just don't quite understand completely. It's those things that twist your heart into knots. They most of the time are words that are never spoken out loud or actions that are not seen by others. They may simply be emotions that are not quite visible to others or thoughts that are constantly running through our minds. Sometimes they tend to take over our thinking and literally drive us crazy. And yes, I admit it, sometimes I wonder if I'm going crazy.

I've said it before. Raising Alayna has been the biggest challenge bestowed upon me in this 35 years I've been alive. I sure wish I could say for a fact that it's going to get easier, but I just don't know that. I worry ALOT. I worry about if there will come a day where I can no longer provide proper care for my own child. I worry if there will come a day that I won't be able to handle her or understand her. I know there are some of my 1p36 families feeling the same way and going through these issues right at this very moment. I worry about the future. I worry about school since her 3rd birthday is on the horizon and where the correct placement will be. I worry about how she'll get there. I worry about her coming in contact with more germs and viruses and becoming sick again. I wonder if she'll ever walk. I wonder if she'll ever speak. I wonder how other children will accept her. I wonder...I worry...I wonder...I worry. Way more than I do with my other three children.

I've come face to face with some difficult issues just in the past few weeks. One has to do with the fact that my three older kids love "little" kids and love playing with them. I watch them interact with typical children that are Alayna's age and I see their faces light up. I watch them chase each other, laugh, hug, and play. This is part of the untold story. I have to deal with the fact that Alayna is not the typical interactive 2-year old that my children would love to play with. The little two-year old that I envisioned my kids to have. It's heart-wrenching. The Kid Kart is another issue for the entire family. While it is beneficial, it is also very "medical" looking. Alexis made this comment to me: "Mom, you aren't going to take her to the game in that are you? Everyone will look." It broke my heart. Again, it's another part of the untold story that we must deal with.

Another issue our little family of 6 is dealing with is the emotional strain put upon everyone. Unfortunately, this includes our 3 older children. Our families "fuses" seems to be shorter, tempers are more likely to fly, and tension tends to build very easily in the walls of our home. There seem to be even higher expectations of our older 3 children than ever before. An overwhelming amount of energy is spent caring for Alayna's needs and even though we don't mean to, we can easily overlook the needs of our other children. It's not right, but in this situation is it too easy to do. Over the last few years, the dynamics of what we knew as a typical family have done a 180 degree turn and continual adjustments have to be made. And that is one of the more difficult challenges we continue to face. I just hope that in the end, our older children will understand what our family situation was and how we tried to do the best we could.

Alayna is still at the developmental stage that her care is very demanding both physically and emotionally. As an educator, summer time is usually a time of relief from work and a time to relax and enjoy. However, I'm dealing with emotions of feeling strapped to the house and more "tied down" AGAIN. I was spoiled by my first three children because when they all were 2 years old we were able to go and do whatever our hearts desired. Realizing that this part of it isn't getting any easier with Alayna is emotional for me.

We love Alayna very much. There is no doubt in that. But these are true emotions and feelings that come along with the territory. It isn't easy and I sure wish it was. It's tiring and sometimes my brain just seems fried. And I'll admit that there are days where I don't want to do it anymore. I want to quit and run away. Somehow though I strum up enough energy to keep going. I have to for Alayna. I have no choice. God gave me no choice.

Thursday, April 23, 2009

Alayna's Angels

Crazy Chi-Omega's from Illinois State University.

We couldn't fit everyone in one photo, so here is the left side of the room too! Didn't want to leave anyone out.

Another group shot of some of Alayna's Angels!

Last weekend my Chi Omega sorority sisters held a fundraiser for Alayna in downtown Chicago. Oh, what a blast! Many of them still live in the city or the suburbs and with families and professions it was difficult for them to come back in November for the Quad City Fundraiser/Trivia Night. So, they decided they wanted to have their own fundraiser. They called themselves "Alayna's Angels" and they truly are just that. Dana and I feel so blessed to have such a supportive network of friends. I think I counted at least 26 Chi Omega's in attendance, plus their spouses, significant others, and friends. Some of them I hadn't seen since graduation day at ISU back in May 1995! And some of them were younger than me and I had never met them before. But they were all there to support Alayna and they expressed this repetitively through their kind words and gracious hearts.

The evening was filled with socializing, a silent auction, a raffle, and a 50/50 drawing. Many of us had our cameras and it was like we were back in college for a night. And for awhile many of us pretended that we didn't have any kids at all! We all enjoyed ourselves so much. I personally enjoyed just seeing everyone and catching up with what they are doing. And oh my goodness, between many of us we have tons of kids! We have lots of "little Chi-O's" coming up!

A special THANK YOU goes out to the main organizers of the benefit: Beata, Diana, Missi, and Kara. You all out-did yourselves and went above and beyond expectations. It means so much for you to have taken time out of your busy lives to plan such a special event to honor Alayna. And a huge THANK YOU to everyone who attended and made it a success. You are all very special people.

Friday, April 17, 2009

2nd Birthday Photos, New Ear Tube & Sleep Issues

2nd Birthday pictures taken at pictureme! at Walmart!
Alayna is fascinated with her left hand lately! She can be soooo sweet.
At most she'd give us is a 1/2 smile while looking at the camera. She'd smile, but never looking at the same time.
Of course we used the bumbo seat to help her sit and it worked nice.
So precious and of course more hands in the mouth!

Walmart Photos

I'm so glad to have gotten photos of Alayna sitting up like a big girl and not laying down. I have been putting off her 2nd birthday photos and I finally just decided to go and do it. Alayna was a happy girl most of the time, but towards the end she was getting tuckered out. The lady was able to get some good shots and I am pleased. The most challenging thing was keeping Alayna's hands out of her mouth and having her sit still. She loves to move around in the bumbo and push back using her legs. I knew getting her to smile was going to be tough. She'd smile, but she would never look at the camera at the same time. She'd always look down or look to the side. Stinker! But she did good considering this morning she had a new tube put in her ear.

New Tube & ABR Hearing Test

It was an early morning for us here at the DeKeyrel household. We had to be in Iowa City by 7:15 am this morning. Alayna was the number 2 patient on the surgical list to get new tubes in her ears and have an ABR test at the same time. Her left tube needed to be replaced because it was clogged and had fallen out. Her right tube was fine so the doctor decided to leave it. And the most wonderful news was that her ABR showed normal hearing results. This is the second ABR that she has had and both results were the same! I'm thrilled and I doubt that she has to have another one for quite a long time. Alayna did well with the procedure, but the most difficult part for her is coming out of the anesthesia. She gets extremely irritable and cries a lot. And she refuses to open her eyes. This lasted for about 30 minutes in the recovery room and I was about to pull my hair out. I felt so bad for her because I think the anesthetic must make the kids feel funny and uncertain. But she eventually snapped out of it, ate her bottle, and off we went! Good job Alayna. Oh, and we got a weight on her...22 pounds. Thankfully she isn't very big because we do a lot of carrying her.

Sleep Issues

We are having sleep issues again. It seems like this goes in cycles for us. Alayna will have about 3 bad months and then maybe a good one and repeat this cycle. It's tough on us when we don't get our rest. And it isn't good for Alayna either. We've tried everything that we can possibly think of. This is a popular topic of discussion on our support group website and I know that many of us 1p36 parents deal with sleep issues. So many of the kids have sleep disturbances in the middle of the night. We wonder why research hasn't documented this as a possible characteristic of the syndrome. I really pray that Alayna grows out of it.

Lately, she is awake for at least an hour at a time in the very early morning. And when she wakes up she usually is crying very loudly to the point that I can hear her over a box fan in the hallway. It's not enjoyable at all. I resort to replacing her pacifier about 2-3 times and if that doesn't work I give up, close her door, and turn the monitor off. I'm sorry Alayna, but mommy needs her sleep in order to function. Melatonin is a natural supplement that can be bought over the counter and is supposed to help with sleep. I purchased some at Walmart and we are trying it. For some kids it works and for some it doesn't. I didn't see much difference the first night, but the second night she slept from 8:45pm-6:45am! Yahoo!!!! But then the next night was torture again. So, I have no conclusion at this point. She is sending me mixed messages!

Annual IFSP Review - Early
Intervention

Last Monday we had Alayna's yearly IFSP review at the CTC with her EI coordinator and therapists. They are all so pleased with how much she has come along in just the last 6 months. She is interacting with toys and is wanting to know how they work. She is starting to bear weight more in her legs and initiate standing from a sitting position on our knee. Her stander seems to be really helping with this and she is adapting well to it. She now gets through at least 45 minutes of therapy when it used to be only a few minutes before she'd get mad and fussy. Eating is going good and she is taking more foods with texture. Her EI coordinator gave us some information to read regarding schooling for her next January. It is unbelievable that it is time to start discussing this already. But when she turns 3 she will graduate from EI and be responsibility of the Rockridge School District. We are thinking about options and in May we will have a 6 month review and likely be closer to a decision. Overall, we are happy with Alayna's continual progress and we are committed to making sure she gets the necessary services to keep moving forward.

Thursday, March 26, 2009

Alayna In Her Stander

Alayna will stand in the stander anywhere from 10-25 minutes at a time. She is doing well and is adjusting faster than I thought. As long as she has a toy, she is happy!

Here is her favorite cloth book again. She loves eating it! The tray to the stander is a Godsend.



Alayna had to go back today to get her AFO's adjusted and cut back on the foot part. They were too closed around the top of her foot and that made it extremely difficult for us to get them on her. They are much better now and this is the first time she stood in the stander with her AFO's on. She didn't mind them at all.

I haven't put her standing completely vertical yet. I've always left her at a slight angle by recommendation from her PT. Usually she tries to sneak her knees up out of the stander, but since her AFO's were on she didn't do this. Maybe they won't allow her to. That would be wonderful because her PT was going to try some knee guards on Monday at her PT session. Maybe she won't need them after all.





Oh, it's so hard getting all of them together at the same time for just one photo! Someone always has to be the clown! Tonight it was Drake. They all still do so well with Alayna and truly love her. Lately, Douglas has been asking me if Alayna is a baby. I don't know why he asks that. I tell him, no she isn't really a baby, she is a toddler. He looks at me funny and I just tell him that she has a lot of baby qualities which is nice! He just smiles....
They are looking forward to a week from now when Spring Break starts. Their Grandpa and Grandma DeKeyrel are blessing them with a vacation to Disney World. Alayna is not old enough to go, so she is staying back home!


Not too much has been happening lately other than the normal, daily grind of work, school, house chores, ball practices, etc. Unfortunately, Alayna is going through another round of restless, early mornings. For a week now she has woke up sometime between 4am-5:30am crying. And she is loud! I can hear her over a closed bedroom door and a box fan on medium speed. It's a period of fussiness that can last anywhere from an hour to an hour and a half. I've been getting up about 5-7 times to replace the pacifier. God, I wish she could find this herself and put it back in. Oh, this task is so hard for her and I hate that it is. I think it is her teeth. Her chin has been really red and broke out lately and that is the only thing I can contribute it too. She doesn't have a cold or ear infection and she is not hungry because she eats more than I'd expect her to. She did this same thing awhile back and I pray that with time it too shall pass. I'm longing to be awoke by my alarm clock and not Alayna.


Again, thank you for reading Alayna's blog and for keeping up with her development. Honestly, things are looking up! Outings are getting a bit easier and Alayna just seems to be happier more often because of her ability to entertain herself. I hope that this summer is easier than the last one. I know that therapy sessions will still keep us busy and nap time will still be important, but I really hope that we can go to the pool more often and get outside and play. It's no fun staying inside every day and feeling cooped up. We'll just have to see!

Monday, March 16, 2009

It's Been An Eventful Month!

Alayna now enjoys sitting in her tub ring and chewing on Douglas's foam tub toys!
Alayna is trying on her new AFO's!
Very tiny AFO's for Alayna to wear while she is in her new stander.

Alayna is sitting better each month. She will sit for minutes at a time, but I'm still a bit protective and put a pillow behind her to catch her fall. A toy on her lap seems to help her balance and forces her to use her tummy muscles to straighten back up again.

Alayna playing with her v-tech car toy. She still continues to love sounds and light toys.

Double-fisted and watching the water! It thrills me that she enjoys having these toys in her mouth in hopes that someday she will be able to eat a cracker or anything else with more texture.
All clean!
Douglas begged for a picture with his little sis! He thinks taking a bath with her now is cool!

Otolaryngology Appointment in Iowa City

A few weeks ago we took Alayna to Iowa City hoping that we would get a sedated ABR. Her first one showed positive results with normal hearing levels, however, they thought we should get a follow up hearing test in a year. The doctor first wanted to try the sound booth, but developmentally Alayna is nowhere ready for that. So, a sedated ABR is the best answer. When we got to the appointment, the protocol was to double check her ears for no infection or fluid so the test would be accurate. Well, low and behold her left tube was no longer in the correct place and she had fluid in both ears. So, out came the tube in the left ear. They decided to not do the test and instead Alayna has an appointment for new tubes on April 17th along with a sedated ABR that will be done in the OR at the same time. I was a bit disappointed, however, now I know why she may have had many sleepless nights and had been rubbing that ear so much. The tubes lasted for about 13 months and that is good.


Stander & AFO's

The stander is finally here and so are the AFO's!! I apologize for not having any pictures of her in it yet, but today her PT, Kim, came out to the house and did all of the necessary measurements to make sure the straps and pads were in the right spots. We also needed training on what to do and how to put her in it. It's a bit intimidating at first. So, she hasn't been in it much yet, but photos will be coming. There is a small problem with her AFO's being so fitted and tight. Our PT doesn't like them that way, so we have to make another appointment to get them adjusted. This isn't at all uncommon. I just want Alayna to be comfortable in them and learn to like them as much as she can! Right now they are too difficult to get her foot into and that does us no good. We are very excited to get her standing. For now, we are starting to do a few minutes at a time until she tolerates it longer. We are also starting at about a 45 degree angle and not completely upright until we know she is ready and can tolerate that as well. It's all about baby steps!

Other Miscellaneous Updates

Alayna has been loving bath times and sitting in her siblings old tub ring. For now it is working just fine. I put a bath sponge on the bottom so she doesn't slip around. I plan on looking for an alternative bath seat that will work for us down the road. As she grows, she won't be able to fit into this forever. Alayna has been sleeping really good (please, I hope I didn't jinx myself). I'm not sure what her problem was a few months ago, but whatever it was has seemed to pass. There is an occasional morning where I might wake up to a cry very early, but for the most part the pacifier fixes the problem. I love the light projector she got for her birthday last year from the Redlinger family and use it about every night. And she has a glow seahorse that plays music too. Love both of them! They help me buy minutes in the morning when I'm still getting ready for work.


Alayna continues to do well eating and drinking. She hasn't expanded her menu much since the last few posts. She loves any and every kind of oatmeal and will eat the entire packet on most mornings. It amazes me! Some days she eats more than others, but that is so typical of any kid. She still isn't quite ready for significant texture, but I keep trying. On average, I'd say she gets at least 15-20 ounces of fluid a day plus food.

I've been using Amlactin body cream on Alayna's legs and arms two times a day for about 2 weeks and I highly recommend it to anyone who battles bumpy skin. It hasn't completely taken the bumps away, but they are noticeably smaller and less red. I'm glad our dermatologist recommended it because so far it has been the only thing we've used and seen any results.

Alayna continues to be a joy to our family. She is a precious little girl and I enjoy holding her and hugging her. She is becoming more alert, watching me talk, grabbing at my hair, my earrings and my necklaces. Getting her to smile is much easier now and the kids are really enjoying her more too. Alayna is very sweet and we continue to say our prayers to keep her healthy and happy. May God continue to watch over her.