
This is Alayna's Paparazzi! These are her siblings: Drake 10, Douglas 6, and Alexis 12. It isn't the easiest job to be a brother or a sister of a disabled child, but these three love her to pieces. Many of us 1p36 families have more than one child and most would agree that their other children are the best siblings to their 1p36 child! The best moments are when they get Alayna to giggle and their faces light up or when they are just cuddling with Alayna and giving her that one-on-one attention. Precious....

Well, my dining room table was evicted and Alayna moved in! We completely changed the look of our dining room so we could make Alayna her own bedroom! She needs her own space where it is dark and quiet. We stripped off the wallpaper, took down the Terry Redlin's and the chandelier and in their places we had it painted by Melissa (who does marvelous), installed a ceiling fan, trimmed the room with oak chair rail, installed solid oak french doors with a glass transom, added new room darkening curtains in two colors, moved in a new bedroom set, and added the pink and brown bedding to make it complete. WE ALL LOVE IT! At first, the other kids would say "Why does Alayna get the best bedroom in the house?" I told them it wasn't any "better" than theirs, it was just Alayna's was CLEAN!!

It's a sleigh bed with a high headboard. However, the footboard isn't as high due to the nice new thick mattress Alayna gets to sleep on. So, we have had to improvise a little to make sure she doesn't fall out. I purchased the two extra tall and extra long side rails from Walmart online. They are wonderful and I highly recommend them. We had 2 others here already, but they were too short and not very long. Then at the end of the bed we put a long body pillow against the foot board to protect that end. And she has tons of pillows, so we put those all around to enclose the space. I think she likes it because she feels secure in in. Best thing we ever did!!

This is her view from the inside of the room looking out into our foyer. I still need to get fake doorknobs. The doors are spring loaded and I like that. And since they are solid, they block out so much noise...it is amazing how much a door can help with that! All of our trim and doors throughout our house were custom made by Keith Gorham. He does amazing work too.

"Laugh Dream Smile" Isn't that what it is all about?! Alayna doesn't have a closet in her room, but she has plenty of drawer space! We just borrow a tiny corner in sister Lexi's closet for the stuff that needs to be hung up. She doesn't mind now that Alayna has moved out! Lexi now has her own room again.

Alayna is the only one sleeping on the main level, but we are literally at the top of the stairs. I still have a monitor on at all times. So far, she has been sleeping really good. I think she has woke up in the middle of the night maybe 2 times since early August. This may me really good for Alayna in the future when she starts to be more mobile. That way she doesn't have to climb stairs to get to her room.

The two things on the chest of drawers have special meaning to Alayna and me. The two Raggedy Ann dolls were handmade by Alayna's great Aunt Linda (the kids call her Bella). It is a mini version of the large one she made me as a child. She has 2 dolls because she stole Lexi's from her room! And the name plaque was needle pointed by Alayna's first babysitter, Lori. It's beautiful too!
3 comments:
Wow Alayna -- You lucky girl. What an awesome room! It is so cute; just like you!! I hope you enjoy it!
Chrystal Weller
Alayna,
What a beautiful room. I am happy to see that you are enjoying the Raggady Ann.
Love you, Bella
Wow Angie! Great room for little Miss Alayna!! It looks great and so does Alayna and all the kids! You are doing such a great job with Alayna and your whole family! You all are amazing and an inspiration for us all!! Take care!
Love,
Meg and her gang
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